The Legend of the Rent

Well, this week was fucking annoying. I was determined to get help for rent without bugging my dad, since he said he wasn't going to help with the rent anymore. It didn't occur to me until this past Sunday to look up "rent assistance". I found a city-run place called the Neighborhood Place. I had a job interview on Monday morning, then went to the Neighborhood Place that serves my area. One of their criteria was that you had to work 250 hours in the previous four months, which for me was June, July, August, and September. If it had included May, I might have qualified, but I fell short. While the woman I talked to was sympathetic to my medical issues, being out of work for medical reasons didn't even matter. She referred me to a ministry that does rent assistance, Ministries United of South Central Louisville (MUSCL), that could possibly help me because of my medical issues. They were only open from 9am until noon Monday through Thursday, and their voice mail said that they would only reply to messages left during that time. I called probably fifteen to twenty times each of the next three days, and all but one of those times I got a busy signal. The one time it rang, which was 9:06am on Thursday morning, it just kept ringing, and I probably gave up around the ninth or tenth ring. I got the impression that they weren't really that busy, more like they must have kept the phone off the hook. I did end up finding another local ministry that might help with rent, but they wouldn't be able to help until the following week, which would've been too late.

I got my unemployment check directly deposited on Thursday, which was just under $300, but it was enough to mean that I only needed $200 more to get the rent and water paid. My roommate's dad , gave us the $200. My mom gave me some additional money for groceries and my psychiatrist appointment.

All this shit reminds me of the "Legend of the Rent" song that Jack Black's character in "School Of Rock" came up with. The next time I need rent assistance, I'll try to do it well before the rent is due, instead of cutting it so close.

I didn't get the job that I interviewed for on Monday, but I did get an assignment at another place starting this Monday, and it actually sounds better than the job I interviewed for. I could've started on Wednesday, if it weren't for having to run around looking for rent assistance.

So, I mentioned having a psychiatrist visit on Tuesday. I've been taking twenty milligrams of Trintellix for the past few months. I couldn't afford to get it at a pharmacy, so I've been living on samples. Everything sucks so bad these days that the twenty milligrams of Trintellix isn't helping. I'm going to try to see about getting on a cheaper medication.

Cruel September

I never did hear from my temp agency, nor did I hear from the other place I applied for. I filed for unemployment a week and a half ago, and afterward applied for a temp agency that had an interesting sounding job. I got to interview for the temp agency a couple of days later. I then was supposed to get an interview with the client. I was hoping that would be this week, but the client was busy this week, so I get to interview this coming Monday morning. My rent is due next week, so talk about nerve racking. Since I'm supposed to apply for at least one job every week that I'm on unemployment, I decided this week to apply for an evening grocery job, since I'm probably gonna need a side hustle even if I get the job I applied for last week. My car is entirely too old to be doing driving for a job like Uber, Lyft, Postmates, or whatever. I can barely handle working one job, but I'd rather work two jobs than move back in with my shithead dad. I have fun plans for today, but I also have dread gnawing at the back of my brain about how I'm going to get rent money before the end of next week without bringing my dad into it, especially since he said he wasn't going to help me with the rent anymore.

I still haven't gotten started on IT certification. My brothers sent me a link to my local community college's Computer and Information Technology program. They seem to think I should go for a degree, but I still think a certification is the way to go, especially since from what I've read so far, the degrees are more for people who eventually want to get into management, which I have no interest in.

I got a "hospital income" check last week, it was only about half of what I was hoping for, $500 instead of $1000. I decided to say "Fuck it" and went and saw Gary Numan anyway, because when is he ever gonna play Louisville again? The Louder Than Life festival was cancelled due to the ground being in bad shape because of a shit ton of rain over the past week. I really feel bad for everyone involved, but at the same time I at least get to feel like I'm not missing out on something.

Cruel summer

I finally got the stone removed on August 20th, and stayed at the hospital overnight. The drain was removed the following morning. Good riddance.

I can't remember if I mentioned it in a previous entry, but I texted my boss at the place I was working at a couple of days after I got out of the hospital in July, and she said I couldn't come back until the restrictions had been lifted. I kept her up to date on my progress. Then it ended up being another month before the stone was removed. I texted her a couple of days after I got out of the hospital in August, and she said I needed to report to my temp agency because my spot had been taken, due to the amount of time I had been gone. I decided to take the whole two weeks before Labor Day off not just so my back and kidney could heal up, but because I also ended up with a bad case of nausea a few days after I got out of the hospital, similar to the case of nausea I had at the end of June and almost all of July. Thankfully, it only lasted about five days this time.

I meant to call my temp agency the week of Labor Day to tell them I was available again, but had a hard time getting mentally prepared to do it. I finally called them the following Monday. They haven't had anything for me, even after applying for a job through them. I put in an application on Thursday for a totally different place.

You know, if it hadn't been for all this kidney bullshit, I probably would've been hired on at the warehouse I was working at by now.

My dad, the evil asshole, wants me to take advantage of the government. I'm under the impression that he thinks it's easier to do than it actually is. Aside from applying for food stamps, I don't even know where to start. Some people seem to have a talent for "gaming the system", but I'm not one of them. I guess I could try applying for Unemployment, though I'm hoping to get working again before I could even get my first check from it.

In other news, my deadbeat roommate has an appointment with Vocational Rehab next week, so hopefully they can get her working soon. Looks like I'm still going to have to miss the Louder Than Life Festival and the Gary Numan concert though.

I'm looking into getting into the IT field. Seems like the best route to go for an absolute beginner like me is to get A+ certification, then go for a Cisco CCNA or CCNET certification.

Health Update, August 19th edition

I thought my stone was going to be removed on the 17th, but it turns out it was just an office visit. The doctor said it would probably be a couple of weeks before they could even do the procedure. I was raging because I had waited over two weeks for that appointment, after having to wait a week after I got out of the hospital for the previous appointment. Hell, my kidney was hurting again, and I wanted the stone and drain out NOW! My bitching paid off, because the doctor freed up some time on Monday for my procedure. He also prescribed me some antibiotics, which seems to have helped with the kidney hurting.

I do not have a conventional case of kidney stones. What the doctor thinks I have is a calyceal diverticulum. The procedure that will be performed is called percutaneous nephrolithotomy. One of the reasons I've been having to wait so long to get this stone out is because this is supposedly a rare condition, and this guy is the most experienced doctor in the area (or at least in this network that I know of) at this procedure.

I'm used to having my health insurance taken out of my check. I realized just over a week ago that since I haven't been working, or getting any kind of pay for that matter, that I've missed a couple of payments. Oopsie. I got a check from my insurance company a few days ago for one of my visits (I think), so I'll be able to make about two or three weeks worth of payments soon.

Life Update, August 4th 2018

I just gave some updates on my health. What else has been going on? I've done some working. Back in May, I was working what was supposed to be a four to six week assignment, but ended up only being two weeks due to low volume. I had to wait two weeks to work again. I didn't really get as many hours as I would've liked in June and July, mostly because of my illness, and I've been off since July 19th due to hospitalization and work restrictions.

On July 4th, I finally got fed up with my roommate not working, and typed up a two page letter telling her what her not working was doing to me, and that she had until the end of the month to get a job, or she would be taken off the lease (she's listed as an occupant) and would have to move out. The reason I typed up a letter instead of telling her verbally is that she has a way of shutting me down when I try to tell her she needs to get a job, usually by saying, "Geez, I get it!" But she really didn't get it, and expressing myself in text was the only way I was going to get through to her. I didn't anticipate feeling like shit the entire month, and extended her deadline to August 31st, since she has been of some help to me, and she seems to be trying to get her shit together. But I need her to find a job soon since I'm unable to work. It's been three years since she got evicted, this shit has gone on long enough.

One of those things that my roommate's not working has done to me is made my social life increasingly more non-existent. The only real "getting out" I do is going to the coffee shop and people watching. It's been a while since I've made any real plans to hang out with people. I need to work on that. It seems like I go out more to watch people have fun than to have fun myself.

There are a couple of good concerts going on in Louisville in late September, one being Gary Numan, the other being the Louder Than Life festival, which actually has a halfway decent lineup this year. My roommate better not cause me to have to miss either.

The last couple of times I've gone out to see indoor live music, I've felt really uncomfortable, mostly because the places were so crowded. One was a tiny club back in March, the other one was a 700-800 capacity venue. The latter was for one of my favorite local bands who hadn't played out in seven years, and I hadn't seen in eight. The place was packed, I couldn't get comfortable, and I ended up leaving about twenty minutes after the band started.

Health Update, August 4th Edition

I went to see my urologist this past weekend, and an appointment has been made to have the stone removed. It's not until August 17th, so it looks like I'll be dealing with this drain in my back for at least another two weeks. I haven't bothered to shower since Sunday, because I have to have help replacing the bandage and tape after every shower. I'm still keeping myself relatively clean though, so I'm not too stinky. It's probably a good thing I'm not able to work, because then I would have to shower every night.

On the upside, my appetite has finally returned, probably thanks to the antibiotic I took for the week after I was discharged from the hospital.

I'm trying to get short term disability. My forms are supposed to be filled out by myself, the physician, and my employer. I haven't faxed my form off yet because the other two parties seem to be doing their own thing. I'll probably go ahead and fax mine off on Monday.

I lost about twenty pounds or more this past month. I'm now around 255 pounds, probably the lightest I've been since 2000 or 2001. I'm not going to go into detail, but it has made, ummm, some things fun again. Let's hope I avoid gaining it all back.

Fun with the U.S. Healthcare System!

I just spent five days in the hospital, and I feel no better now than I did before I went in. But before I go into that, I should probably go into my health insurance dealings since I left Steel Johnson. I'm gonna have a hell of a time trying to recall all the details.

In February, people were telling me about how expensive COBRA coverage was. I had COBRA back in 2009, and I remembered it being somewhat reasonable. I got a bad case of sticker shock when I enrolled in COBRA over the phone: $570 for medical, dental, and vision! Medical alone was like $523 or something. I then remembered that President Obama subsidized COBRA in 2009, making it more affordable. This alone is why Obama haters can eat my ass. I tried applying for ACA coverage outside the enrollment period, but was overwhelmed by the questions, especially since they involved trying to estimate income when I didn't know how much I was going to make. But I had doctor appointments in March, so I went ahead and signed up for COBRA. COBRA didn't even take effect until mid-March, so I had to pay some out-of-pocket for the first half of the month, then when it was active, it became retroactive from March 1st. Steel Johnson's open enrollment period was in March, and coverage went up from $570 for medical, vision, and dental, to $570 for medical ALONE! I should've started working no later than the beginning of April, but I didn't start until the beginning of May. So, I had no money to pay for COBRA by May, and my coverage lapsed. Matters were made worse when the job I was working that was supposed to be a four to six week assignment only ended up lasting two weeks due to lower than expected volume. I got insurance through my temp agency, the overall insurance thing being called The American Worker. It seemed pretty decent for the most part, except they don't have actual prescription coverage, just some kind of prescription discount program. I would've had to pay out the ass for Xigduo, but I got a card that helped me pay nothing for a 90-day supply. I'd also have to pay out the ass for Trintellix. I've had no luck getting real help from the manufacturer for paying for it, so I've been relying on the generosity of my psychiatrist's office and a friend who works at a doctor's office to provide me with samples.

If I got to do it all over again, I would've quit Steel Johnson around the time of the ACA's Open Enrollment, which just happens to coincide with Steel Johnson's Holiday Peak Season, so that could've saved me from beating my head against a wall over insurance and dealing with the fucking nightmare that is Peak.

Back on June 8th, I had something odd happen. I had to urinate frequently, almost as if my diabetes meds failed me. I was also tired as fuck that night. I couldn't sleep that night because I had to go to the restroom so frequently, and because my brother was sleeping in the guest room, so I didn't have a fan to provide white noise for me. I seemed to be closer to normal by the end of that weekend. I don't know if it had anything to do with my current health debacle or not.

Okay, now for the main story. On the morning of June 27th, I was feeling really down, probably because of my roommate's continued unemployment, and wondering what the fuck I was working for. Even though I took an Adderall that morning, I couldn't concentrate to save my life. I usually wait until lunch time to take my second Adderall, but I took it on my first break instead, and I instantly felt better by the time my break ended. I got to leave work early, and went to a coffee shop, where I had a Frozen Cappuccino. I got home around 5:00, and as soon as I opened my apartment door, I felt chills. I went to bed as soon as I could. I think the chills only lasted a couple of hours, but I still felt awful. The only symptoms I remember as of now were low appetite, and my head feeling like a balloon. I got up at some point to try to eat something with my night time meds, and forced myself to eat a protein bar. I spent most of the next two days trying to sleep it off, but I tried to get out and get something to eat the next day. The only food I ordered at Arby's was a half pound roast beef sandwich, which I usually have no problem devouring, but I couldn't finish it! I stopped by Walmart to check my blood pressure, and it was sky high, 149/91. On the 29th, I went to an emergency room. My symptoms were so all over the place that I'm sure I just confused everyone working there. It probably didn't help that I have a harder time communicating than normal when I'm not feeling well, due to my Central Auditory Processing Disorder. My blood pressure seemed to be normalizing by the time I got to the hospital, but I still had a horrendous headache. That could've possibly been caffeine withdrawal. They treated me for dehydration, and then sent me on my way. I noticed something in my after-care papers about Leukocytosis, which implies an infection, but I guess they didn't think it was a big deal. I wish I had gone to the ER as soon as I had gotten the chills that Wednesday, but oh well. I thought that the adderall and Frozen Cappuccino must have played a part in my illness, but as it turns out, this wasn't over, and I'm not so sure that they played any part in it.

I realized by July 4th that I didn't have much more of an appetite than I did before I went to the ER, so I tried to start eating "bland" foods the day after. It also seemed to be affecting my ability to work, because I was absolutely miserable. On the night of July 5th, I noticed some tenderness on my right side, right below my rib cage. I finally made a call to my doctor's office on the morning of the 6th to try to make an ER followup appointment, but I think one of the doctors was going to be gone that week, and there were no openings for that following week. I left work early that day and went to an urgent care center. The nurse practitioner said that the spot where I was feeling tender was my gallbladder. She said she couldn't do any gallbladder testing, that only my doctor could order gallbladder testing. What was the point of going to Urgent Care then? The following Monday (July 9th), I called my doctor's office to make a an ER/Urgent Care followup appointment and hopefully gallbladder testing, and got an appointment for the following Monday morning (the 16th), so I had to suffer for another week, as long as things didn't get worse, in which case I would've went back to the ER. At the doctor's office, they just did some labs and some other stuff. I then went home. Then somebody from the office called to help me set up an appointment for an ultrasound, which was for the following morning. I had the ultrasound done, and that was that. I had to work ten hours on Wednesday (the 18th), and didn't get to take my last break until after 5:30pm. I had a voicemail from 3:00-something from my doctor's office telling me to call them back, but their office closed at 5:00, so I was going to have to wait until the morning. I called them back the next morning, and they said that they were ordering a CT scan, and scheduled it for the following Wednesday. By this point, I was super pissed because I had been dealing with this shit for over three weeks, when my appendicitis in 2001 was diagnosed and treated in a matter of days. But with the appendicitis, it probably helped that I only had one symptom, making it easier to diagnose. I had already been fasting that morning, and after some bitching and some phone calls, I was able to get in for a CT scan that morning. I decided not to go in to work that day because I still needed to recover from the previous day, and I didn't want to miss any calls from the doctor's office. I got a call from them by that afternoon. They said that they found a 4cm abscess on my right kidney that happened to include a non-obstructing stone, and it was urgent enough to make an appointment with a urologist for the next morning (the 20th). I called the urologist's office to ask about fasting, and they said it wouldn't be necessary.

All I had to eat on the morning of my urologist's appointment was a quarter of a Complete Cookie. While I was driving to the urologist, I thought to myself, "Damn it, I want a slice of pizza after I leave this place!" I was already hangry by 10:30 that morning, and the fact that the office had pizza catered for them that day just made it worse. I finally got to see the urologist, and he sounded like he wanted to operate that day, but didn't have a copy of the CT scan to go by. I was then told that I couldn't eat, or even drink much water, making my hangry even worse. I went back home and gathered some stuff, and waited for my roommate to come home from her appointment so she could take me to the hospital, because I wasn't sure if I was going to be able to drive whenever they discharged me. We got to the hospital sometime after 2:00pm. They still hadn't gotten a copy of the CT scan, but were working on getting it, so they couldn't do the surgery that day. I was eventually allowed to eat. I also got a pizza slice from the cafeteria after it reopened at 11:30 that night.

I was able to have the procedure to drain my abscess done the following morning (July 21st), but the stone was still in there. Most of the abscess got drained, but they kept a needle in my back with a tube to continue draining, which then went into a bag. I spent a few more days in the hospital. Trying to sleep was a bitch, because I had no white noise to drown out the sound of the IV pumping stuff every fifteen seconds. Earplugs barely even worked. Whenever I did sleep, I was periodically woke up to be poked and prodded. I ended up having another CT scan done one morning just to see where the drain was attached, I think. The next morning, I had x-rays done to see if the stone was "communicating" with the urinary tract or not. If it was, then I think they were just going to go through the urinary tract and break it up. But if not, then they were going to have to go through the "perf-hole" provided by my drain. I honestly can't remember, but I think it was concluded that the stone wasn't "communicating" with the urinary tract, so they were going to have to go through the "perf-hole" to get it. Unfortunately, this was not going to be done that day, and I was discharged with the goddamn drain still in my back, and my baggie strapped to my leg. This was on a Wednesday, and I wouldn't get to see the urologist again until the following Wednesday, August 1st! Before I forget, he said something about having a specialist from Indianapolis to do the surgery, so now I'm wondering, am I going to have to go all the way to Indianapolis to do the surgery, or is the specialist going to Louisville to do it? And when the fuck will it be done? Because I don't want to have to keep this shit attached to me any later than the end of next week. I feel bad for people who have to deal with this shit on a daily basis. I was able to get a lifting restriction from the doc for work, but my boss said that I couldn't return until all restrictions were lifted. So, who knows when I'll get paid again. Before I was discharged, I had a woman from the hospital's Financial Aid division tell me that my insurance wasn't going to pay for hardly any of my hospital visit, so she helped me apply for aid, but I still had to go home and print out a month's worth of pay stubs, as well as my 2017 Federal Tax Return, and mailed them off. But back to income, I have a "Hospital Income" policy through State Farm which should help for the time that I was in the hospital. I still need to see if I can get Short Term Disability through my employer. If not, then I guess I'll have to start a GoFundMe page.

After all this, I still have that "sick to my stomach" feeling, and I've gone back to a bland diet. I figure this won't change until after the stone is removed. And I didn't think to ask what the hell caused the abscess and stone in the first place?

To be continued.